Hayden has a bent toe. It has gradually been bending. We know for sure it is not rickets, something that people with cystinosis can sometimes get. In fact we have no idea why this has happened as it is something that the elderly usually need medical intervention for.
So with his toe so bent and pressing into the toes beside it surgery is necessary so it can be pinned.
Fingers crossed Hayden adjusts to the cast on his foot quickly.
Tuesday, 17 June 2014
Monday, 16 June 2014
Monday Menu 16 June
This is a rather hectic week in our house so our meals are really easy.
Monday meat pie with baked potato and green vege.
Tuesday crockpot on rice.
Wednesday Creamy Chipotle Tomato Soup
Thursday easy fried rice
Friday Homemade hamburgers
Saturday french onion soup.
Sunday Leftovers
I am linking this page to I'm an organising Junkie.
Monday meat pie with baked potato and green vege.
Tuesday crockpot on rice.
Wednesday Creamy Chipotle Tomato Soup
Thursday easy fried rice
Friday Homemade hamburgers
Saturday french onion soup.
Sunday Leftovers
I am linking this page to I'm an organising Junkie.
Saturday, 14 June 2014
In 35 years
Friday was a full moon and Friday 13. This is a rare moment in time. In fact it will happen again in 35 years when I will sure be old and grey.
So using this tutorial from Capture Your 365 by Katrina Kennedy I took out my SLR camera and its book and had a go at capturing the moon.
One moment in time recorded on a crisp June evening.
So using this tutorial from Capture Your 365 by Katrina Kennedy I took out my SLR camera and its book and had a go at capturing the moon.
One moment in time recorded on a crisp June evening.
Friday, 13 June 2014
Fridays Fabulous 5 #57
The year is passing by fast and believe it or not the weather still reaches moment when I think that my winter layers are just too much and I should have my sun dress on. I sure wont be holding my breath as winter in full is yet to arrive.
Anyway enough of the small chat. Here are my finds for this friday.
- These fabulous jars from The Painted Hive.
- Have you see this ad. by VW all about driving a car with cellphone is your hand. Well worth watching.
- Are you ever looking for subway art. eighteen25 is the blog to visit.
- Then what about a selection of burgers to have on hand. Just for Friday night when we are rushing about for Friday night sport.
- Finally just a little plug for a charity that tries to look after families who care for disabled/ medically fragile children SmileDial this is for you.
Don't forget to link me up to any of your favourites.
Have a great weekend.
Wednesday, 11 June 2014
Wordless Wednesday 11 June
Here is our new world...well sitting on the table in Andres bedroom.
I am linking this post to My Little Drummer Boys.
Tuesday, 10 June 2014
Our Fabulous Neighbour.
The lovely Faye live just 5 minutes down the road. She is the very young age of 70 and lives alone with her many animals including Lucky...her rescue dog.
Hayden has taken a liking to visiting Faye and her dog. She has taken a liking to Hayden visiting.
So this is what a visit to Fayes house looks like.
Hayden has taken a liking to visiting Faye and her dog. She has taken a liking to Hayden visiting.
So this is what a visit to Fayes house looks like.
Hayden walking Lucky around Faye's yard.
Showing lots of love.
Great friends.
Lucky was a very anxious dog when he was rescued. Now he hears Hayden coming up the road and barks with excitement at his pending visit.
We are not in a position to care for a dog. You really need the time to dedicate to one. Something we don't have much of.
So thank you to Faye. Hayden has these photos hanging on the wall in his room. He can't wait to show us these photos most days.
Mondays Menu 9 June
The week began with a big rain. In fact I am posting this on Tuesday and it is still raining....and cold.
So without writing any more here is my menu.
Monday easy vege fried rice
Tuesday steak, baked potato and salad.
Wednesday Barbecue Beer Braised Beef with steamed green vege and baked potato
Thursday beef wrap with salad vege and cold meat (warmed up from yesterdays leftovers)
Friday French onion soup (crockpot)
Saturday Out for dinner.
Sunday Coconut Thai Curry chicken
I am linking this post with I'm an Organising Junkie.
So without writing any more here is my menu.
Monday easy vege fried rice
Tuesday steak, baked potato and salad.
Wednesday Barbecue Beer Braised Beef with steamed green vege and baked potato
Thursday beef wrap with salad vege and cold meat (warmed up from yesterdays leftovers)
Friday French onion soup (crockpot)
Saturday Out for dinner.
Sunday Coconut Thai Curry chicken
(Coconut Thai Curry Chicken)
Monday, 9 June 2014
A Perfect Winters Morning
It is no secret that I love summer. I love the balmy temperatures, I love how the the sunshine makes me feel happy. So it will come as no surprise that I am one who hides from the crisp cold of winter.
Of course you can not spend all the cooler months moving around by the warmth of the warmth of the fire.
So when there happens to be a crisp but clear morning I just have to admire the moment and be pleased that while it might be cold it is lovely and fine with the anticipation that the sun might just warm up enough to disguise the brisk seasonal weather.
Of course you can not spend all the cooler months moving around by the warmth of the warmth of the fire.
(all the credits for this page can be found over at Plain Digital Wrapper)
Sunday, 8 June 2014
Just how tidy is tidy?
After the usual two hour morning breakfast and medciation routine Hayden has made an incredible mess. Lego, teddies, pens/ pencils, water bottles and cups.....you know the sort of list that comes with Hayden a child like Hayden in the house.
So at the end of our routine, when the behaviour management medication has kicked in, Hayden somewhat compliantly packs up.... some mornings. The brain injury he has as manifested in behaviour, that when unmedicated is extreme. Some mornings we can spend a good 10 minutes picking up every piece of Lego, every pen, book and anything else within reach, from around the family room. The photo below is on a good morning and still only some of the stuff spread around the room.
So you can imagine just how happy I am when I get this result called tidy by Hayden just as he puts his shoes on to catch the taxi to his special school.
Yes everything might not be away or even away just the how I like it. But it is sure better than having to spend the ten minutes gathering everything up the way it usually happens.
So at the end of our routine, when the behaviour management medication has kicked in, Hayden somewhat compliantly packs up.... some mornings. The brain injury he has as manifested in behaviour, that when unmedicated is extreme. Some mornings we can spend a good 10 minutes picking up every piece of Lego, every pen, book and anything else within reach, from around the family room. The photo below is on a good morning and still only some of the stuff spread around the room.
So you can imagine just how happy I am when I get this result called tidy by Hayden just as he puts his shoes on to catch the taxi to his special school.
Yes everything might not be away or even away just the how I like it. But it is sure better than having to spend the ten minutes gathering everything up the way it usually happens.
Tuesday, 3 June 2014
Wordless Wednesday 4 June
My DD wants to be fit for her hockey. So hill running was it this weekend just gone.
I am linking this post to My Little Drummer Boys.
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