Wordless Wednesday 7 March

It is Wordless Wednesday again and Andre is out bird spotting for his homework.  He had great fun.  It was a new activity for him and one I think he is going to love having another go at.

I am linking this post to My Little Drummer Boys.

Dulcet

Just sometimes life gets a little ahead of me and I feel a need to just let it all out.  Possibly this is when I get tired or even when I have been the solo parent thing for a while while DH is away for work. 

Anyway here is my inspired thought, well someones quote which said things much better than I could.

The credits for this page can be found here.

Now I need to print this out just to remind myself that things are really not as bad as they might seem just now.  I suppose in the words of one of my wonderful sisters 'There is always someone worse off than you."

Monday Menu 5 March

March is here and officially the weather experts tell us here in New Zealand that we did not have a summer.  I could have told them that without all the university education that I assume they have invested in.   Now it feels like autumn is well and truely here.

So here I am trying to stay in touch with my life by posting my menu.

Monday   spaghetti bolignaise

Tuesday  Chicken, baked potato and vege

Wednesday  Lamb Rogan Josh with salad

Thursday  stirfry chicken on noodles

Friday  tomato and feta frittata with salad

Saturday bacon, pumpkin and feta piza

Sunday   leftovers.

I am lining this menu to I'm an Organising Junkie

February in Numbers

Wow what a month it has been.  What with the start of the school year and all extra curricular activities starting I am back running around like taxi driver yet again.

My month looked something like this.

3 children happily started the school year. 

(Mckenzie doing her homework)

4 is the number of after school activities that started up again.  That is speech and drama, golf, athletics and swimming.



7 am is the time McKenzies bus leaves to take her to school making 0545hrs the time we get out of bed to be organised enough

(taken just after my eyes focused at that time of the morning.)

15 is the number of hours that I spent on the go one day.  The few hours left saw my usual interrupted sleep pattern awaiting.


116 is the number of times that Hayden had medication administered through his mckey button.


1 hours is the amount of waiting time we have when I am doing the after noon school run.

I am linking this to Notes on Paper.

Wordless Wednesday 29 February

My post today is my part to create just a little awareness of International Rare Disease Day. 

Wednesday 29 February is a once in 1461 days occurrence. The extra day in a leap-year. And it is NZ Rare Disease Day.

Most rare diseases occur much less frequently than leap-days. One in 2000 to one in hundreds of thousands is the pattern for more than 7000 rare diseases. Individually they are rare but together they are common, affecting an estimated 8% of the entire population. If spread evenly that would be one in twelve households affected by a rare disease.  If you want to find out some more try here

As some of you are aware one of my children fits this category.  He  has Cystinosis a rare metabolic condition which effects many of the bodies organs.  At the moment the disease is evident in his kidneys and eyes.  Along with this he has some secondary conditions...cognative delay being the most significant of them.   He has many doctors who help look after his health and he has regular stays in hospital.

Legally my son is disabled.

So these photos are a celebration of him and all the medical professionals who are part of the team looking after him.

(Hayden just after school showing me the stamp he got for being a good boy at the school he attends)

(Another photo of Hayden enjoying boxes, tape and scissors)

(Of course it would not be Hayden if we did not have a photo of him in hospital.  This visit was in November with a gastro bug.  Three days and four nights in hospital.  Here he is ED while blood tests are done so the right hydration and electrolyte plan can be implimented before being put upstairs into a ward.)

I am linking this post to My Little Drummer Boys.

Did I tell you...

Did I tell you that there is a budding flautist in our house.  My tone deaf daughter has to learn an instrument for the next 4 years at school.  I suggest she might be best to learn a untuned percussion instrument.  School picked the flute for her to learn.


At least after two weeks she looks the part but no notes to be heard.  Plenty of wind though.

Monday Menu 27 February

The end of February is here already.  Here is my menu

Monday  Sweet and sour chicken with noodles ( used the noodles not the rice)

Tuesday  Beef Crockpot

Wednesday  Cold meat and salad

Thursday  marinated lamb on rice with tomato salad

Friday  Fish patties in a burger bun with salad

Saturday  Sausage casserole

Sunday  Leftovers

I am  linking this post up to Im an Organizing Junkie

Soliloquy

So my Little Word, Breathe, is making steps forward.  As part of my art journaling journey I needed to write something pertaining to a soliloquy.  I chose to write a letter.  Actually it turned out to be something very deep from inside me. 

I am sure learning to stop and look at my life just a little more carefully this year.

(The credits for this page a long with a closer look at the journaling can be found here at Nuts4Digi)

Look there Grandad

Hayden makes us smile frequently.  This was just one of those moments that he shows where is cognative level is at.

Hayden (talking into the phone)  

(Ok his hair looks bad.  He attempted to cut it by himself)

 Hello Grandad.....yes .....yes...... Hayden said the F word.   Yes he said the naughty word..........Grandad can you see the plane in the sky....there it is.  ...look it is a cesnar.

Wordless Wednesday 22 February

Here is another week of Wordless Wednesday.

Needless to say school athletics day can be a heap of fun.

Lets not forget the green hair colour and the green finger nails.

I am linking this post up to My Little Drummer Boys.