Discouraged

There are days when I feel discouraged.  My life revolves around my family....I wouldn't have it any other way...I love it in fact.  But today Hayden has a gastro bug and with his medical condition it needs serious attention.  While he is not sick enough to be in hospital (which is what the case would usually be) he can't go to school which is fair enough.  Sadly being home with Hayden when he is sick is not like my other children.  He is not tolerating any of his medicines and that means special plans, careful hydration processes and constant monitoring.  A lack of behaviour modification medication means he is unable to sit still or concentrate on any task for any length of time. 

Today Hayden is not sick enough to be lying around.  He does not know what to do with himself and because of his ADHD, today he is unable to do anything and it is extraordinarily difficult to keep him entertained.   In fact today Hayden behaved anything but sick except for the many visits to the toilet.

It really is discouraging, that today just like many other in the past and as will be in the future, Hayden runs the fine line of being in hospital or not.  Oh how I wish sometimes,  that thing are not the way they and my child life was medically just like every other fun loving child.

Just as well these thoughts are short lived isn't it.

Here is Hayden at 7am today.  Looking a tad dehydrated (by about 1kg in weight) hooked up to his pump which is pumping water directly into his stomach.