Wordless Wednesday 29 May

There is nothing like learning a new skill.  No bumps or bruises were evident at the end so it must have been good fun.

 

I am linking this post to My Little Drummer Boys.

When enough is enough.

Most people do not realise how difficult our lives became when my son became disabled.  Back in February 2006 when Hayden became disabled one of the many things he was left with upon recovery were significant behavioural issues.  We lived with these behaviours initially hoping that they would recover and they would moderate over time.  Unfortunately this did not happen and in fact the behaviours have become harder to deal with as he has got older and stronger.

Now for our own sanity Hayden is medicated for his behaviours but the challenge we have been trying to overcome has always been that he does not swallow medication.  Especially tablets.  Everything has to go through his peg.

Last week I was told that Hayden's behaviour is at the extreme end of things and that the consultant we see has never seen behaviour like it.  He has concluded that Hayden needs to be referred on.  Also that Haydens behaviour is like one of a kind certainly in his experience and finally that Hayden should have it noted that his behaviour is his most significant disability, even more significant than the rigors of cystinosis.

Phew..... we live with this behaviour everyday and most significantly the unmedicated times of before school and after school.  It is exhausting and stressful.  Last week when we were at the appointment I was unwell so was at a low point.  So it sure felt good to hear that his behaviour has been put in perspective and it is not just me the parent and professionally the teacher over exaggerating things.

Fingers crossed that something more can be done for use before we can no longer cope with everything he throws at us.

So while I have written a lot of doom and gloom there are a few moments of spontaneous fun....alright this is when he is medicated.....

 

(credits....kit is Berry Delight by Caroline B at Nuts4Digi)

Monday Menu 27 May

With a wintery blast in our end of the world today I have a weeks menu which reflects that.

Monday  steak marinaded with baked potato and salad

Tuesday  crockpot for today.

Wednesday  meatballs on pasta with salad

Thursday  warm chicken wonton salad

Friday Middle Eastern pizza with salad

Saturday blue cheese chicken burgers

Sunday  leftovers.

I am linking this to I'm an Organising Junkie.

Project 365 April

We very belatedly here are my pages.  I am actually very excited about the way that they are turning out.  I love bright colours and these pages do not net me down.  I know it is a long way to go but I can't wait to see what they look like in the book I will get made at the end of the year.

 

The products I used are Life 365 in a box and Life 365 Hodge Podge 4 from Weeds and Wildflowers, Over the Rainbow by Lindsay Jane  Ray of Sunshine by Lindsay Jane

Fridays Fabulous Five #39

Here is again my list of finds for the week.

• take a read with a box of tissues.
• What about some homemade laundry powder.
• What about something for the keen blogger.  A printable planner.
• Just maybe I will find the energy to make this bar to put in the lunch boxes.
• 10 printable games to play in the car.  Especially good if you and your children spend plenty of time in the car.

What do your favourite links look like this week.

Wordless Wednesday 22 May

It has been a few weeks since I have time to post for Wordless Wednesday but here we go.  Today you can see my disabled son scared of electrical storms at night. We have been having a lot of them lately. Thank fully he is not unhooking himself from his pump and overnight feed to walk down the hallway and tell us that he is scared.

 I am linking this up to Trish at My Little Drummer Boys.

Monday Menu 20 May

I am feeling the need for some winter food so here is my menu.

Monday   I love soup so Pumpkin Soup  with homemade bread.

Tuesday  crockpot meal. on rice

Wednesday  spaghetti bolognaise

Thursday   chicken drum sticks with baked potatoes and salad

Friday  french onion soup

Saturday   baked falafel balls  with rice and salad.

Sunday  Leftovers.

I am linking this post to I'm an Organising Junkie.

Fridays Finds on Monday # 38

Very belatedly as I have been sick here are my links for this week.

• ever stuck for paper for your child to use for homework.  For an emergency then this printable paper site is just for you.
• My favourite soup for the winter.  So easy to make and loved by all.
• What about designing your own business card.
• Companion planting for my new garden.
• I love this post from eighteen25 blog

I hope you like these links

April in Numbers

I know I am a little late but the month not sooner finished and the school holidays were over.  Once again we were back into full swing.

• 12 days of March were school holidays.  The end of term 1 which unusually had 11 weeks in it so everyone in our house was really tired.
• My husband and I had for the very first time 4 days and night with no children at home.  We really didn't know what to do with ourselves. 
• Did you know that when you fly around New Zealand domestically your 12 year old is classed as an adult but when flying without an adult they are still a child.  As if I did not know that my lovely 12 year old is still a child.

• It rained finally.  After many months without rain and having to buy rain twice we finally have day enough rain.  Now all I can say is that we don't need any more...50,000 litres of water tanks are now full.  So rain please stop.
• The ride on mower is now officially irreparable.  So now it takes 3.5 hours to hand mow it and because it is raining the grass is growing ....fast.  Here is my grass after it being mown.

• My little boy who is 9 spent his last day at his school.  He is moving to a new school.  It was a sad and exciting moment for him.  
• The winter sport, hockey, trials we held and teams names with both my children excited about the teams they are in.  What hockey means for our Saturday morning is usually two games at two different destinations.  We are left charging around Auckland.
• My term of 0.5 work (2 1/2 ) days a week has turning into 0.7 days (3 1/2).  This is good news as it gives me steady work without being full time.

I am linking this very belatedly to Notes of Paper

Fridays Fabulous Finds #37

My blogging has been sporadic of late but hopefully things will settle down and I will get back into routine.

Here are this weeks links to take a look at.

• printing on post its.  It seems to be a popular thing to do at the moment.
• then there is this article on holiday planning for staycationers.
• what about a printable globe complete with instructions. 
• what about your own chalkboard fonts.  Now you might be able to make your own subway art.
• I love this blog post about happiness.  I don't know if I have shared it before but it is worth another look if I have.

Mondays Menu 6 May

Winter is really here and we now are thinking of nice warm meals to have in the evenings.

Monday  beef stew on rice

Tuesday  stir fry chicken on noodles (using the coconut cream stir fry recipe)

Wednesday  felafel balls on rice with green salad

Thursday   zucchini loaf with baked potatoes and veges

Friday   meatloaf with salad

Saturday   pizza with left over vegetables

Sunday  Homemade hamburgers.

I am linking this post to I'm an Organising Junkie