Can you believe it. Hayden's port a cath has failed and it has not been in his body 12 months. Failed means that it is blocked in some way and blood, heprin and other such fluid cant move in and out of his body as required. This means surgery.
Port a cath....I forget that in our house everyone knows what this medical device is but most people would not have even heard of one. It is a device that is inserted into Hayden's vein near his heart and enables easy access for his monthly blood tests. It also is handy when he need hospitalisation for IV fluids to be administered.
Here is a picture of Hayden showing off his medical devices. Thank you to the tax payers of New Zealand for all the medical intervention Hayden gets. DD took the photo for a school project about modern technology in our house. I guess this was a unique photo amongst the class.
Anyway back to the surgery bit. I found out yesterday that surgery is scheduled for next Wednesday. A very quick notification for surgery which is surprising as the health system, in my experience, is not known for it speed.
I am really grateful for the surgery happening now even though I hate the thought of trying to entertain Hayden with an IV lure in, nurse him through the nausea he get from anesthetic so he can be discharged much later in the day.
I really am grateful
that the surgery is happening now and not in the middle of winter
that there will be a play specialist there to help, fingers crossed
I will have time to give Hayden his Rubifen before we go
the staff at Starship Day Stay know Hayden
I will get to sleep in my own bed and not on a mattress in a ward
That DH is home for my other children
2 comments:
Oh no Tam, that is bad news, poor little guy. I hope everything goes well, at least they're looking after you with a speedy schedule.
This truly seems to be "hospital" week, Tamara. I am glad your DS can get the surgery he needs, and I suppose your family all go through it, nearly like routine, but it seems very traumatic, if it were happening in my family. Poor DS, but there is no choice, so you have to go with it. Good luck for next week.
Deb.
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